My heart defect

I was born in 1977, with a defect that is similar to Tetralogy of Fallot. Although my treatment has been successful insofar as I live a 'normal' life; the effects of having open heart surgery have resulted in me very occasionally getting uncontrollable tachycardia, which is potentially life-threatening. To reduce the risk from this, in 2005 I was successfully fitted with an ICD. To date, it has only fired twice; in 2010 and 2014.

I am seen by the Grown-up Congenital Heart Disease team at the Barts Heart Centre in London. I have annual clinic and pacing appointments. My ICD is also monitored remotely through a device that is placed in my bedroom.

Since 1999, I have taken Bisprolol. My current dosage is 7.5mg.

Full details of my defect and procedures

My week as @NHS curator

In February 2020, I was the curator of the @NHS account, talking about living with a congenital heart defect. Unfortunately, due to unrelated illness, I wasn't able to complete the full week. However here are the main threads: