I was born in 1977, with a defect that is similar to Tetralogy of Fallot. Although my treatment has been successful insofar as I live a 'normal' life; the effects of having open heart surgery have resulted in me very occasionally getting uncontrollable tachycardia, which is potentially life-threatening. To reduce the risk from this, in 2005 I was successfully fitted with an ICD. To date, it has only fired twice; in 2010 and 2014.
I am seen by the Grown-up Congenital Heart Disease team at the Barts Heart Centre in London. I have annual clinic and pacing appointments. My ICD is also monitored remotely through a device that is placed in my bedroom.
Since 1999, I have taken Bisprolol. My current dosage is 7.5mg.
Full details of my defect and procedures
In February 2020, I was the curator of the @NHS account, talking about living with a congenital heart defect. Unfortunately, due to unrelated illness, I wasn't able to complete the full week. However here are the main threads:
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